In this issue
Highlights
New dialysis centre at University Hospital Lewisham opening in April 2019
A closer look at the Perioperative Medicine for Older People having Surgery team
News from the Trust
Four years at the top for staff engagement
Community Medicines Project
Service updates
The national Klinefelter Syndrome multispecialty clinic at Guy’s Hospital
Adult Dermatology including Skin Cancer Screening Clinics running at the Guy’s and St Thomas’ sites
Rejected referrals – take action!
Paediatric Physiotherapy & Dietetics
Children's general paediatric clinics at the Mary Sheridan Centre – lower wait times
Partnership News
How is the Children & Young People’s Health Partnership (CYPHP) affecting your work?
Children & Young People’s Health Partnership: Missed last week’s Child Health Protected Learning Time event? Get your CYPHP resource pack now!
Research
Detecting the risk of stillbirth
Breakthrough for Crohn’s?
Training and events
Free Skype lunchtime seminar - Rheumatology for GPs and primary care clinicians
Gastroenterology and Hepatology Workshop for GPs and Nurse Practitioners
Infectious Disease in Migrants for GPs and Nurse Practitioners
Training and events
Royal College of General Practitioners: Career Development Workshop
Schwartz Centre Round: It’s not in the books
King’s Health Partners Cardiovascular: Improving prognosis, life expectancy and outcomes in heart failure
GP Dermatology Course
Cancer genetics course at Guy’s and St Thomas’
Allergy in Adults for GPs and Nurse Practitioners
New Technologies in Thoracic Oncology Conference 2019
Have your say
Diagnosis of neurological and mental health disorders
Contact
Alex Risorto
Alex.Risorto@gstt.nhs.uk
Tel: 020 7188 4978
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The national Klinefelter Syndrome multispecialty clinic at Guy’s Hospital

The Klinefelter Syndrome Multi-Specialty clinic is one of the first in the UK & Europe to address the many needs of patients diagnosed with Klinefelter (XXY) Syndrome. Klinefelter Syndrome affects 1:500 men and is thought to be one of the most common congenital chromosomal disorders. Fertility, hormonal and well-being issues are the main concerns in men affected with Klinefelter Syndrome.

 

What we do:

 

A specialist one-stop clinic has been set up at Guy’s Hospital that covers all important aspects of the disease, with experts in genetics, endocrinology, urology, reproductive medicine and radiology all seeing and counselling patients through the various aspects of the condition. A nurse counsellor is present to address any other personal concerns a patient may have. An individualised management plan is then created for each patient based on their priorities and this is given to both patient and GP/referring clinician.

 

Having a one-stop clinic reduces the number of visits a patient will have to make, from an average of 6-7 visits for investigations and clinic appointments to just the one visit. The one-stop clinic also reduces overall waiting time by up to 12-16 months and importantly also effectively ensures that all the key issues in the disease can be covered by a dedicated team in a specialist setting. A member of the Klinefelter Syndrome Association (www.ksa-uk.net ) is also present to give a personal view on living with Klinefelter Syndrome.

 

How to refer:

 

To refer a patient with Klinefelter Syndrome to the clinic please email; gst-tr.urologyguysreferrals@nhs.net

 

A checklist for referrals is available on;

 

https://www.guysandstthomas.nhs.uk/resources/our-services/urology-and-transplant/klinefelter-syndrome-referral-checklist.docx

 

Useful additional sources of information:

 

The Klinefelter Clinic at Guy’ Hosptial: www.guysandstthomas.nhs.uk/our-services/urology/specialties/klinefelter-syndome/overview.aspx

 

Klinefelter Syndrome patient information sheet: www.guysandstthomas.nhs.uk/resources/patient-information/urology/andrology/klinefelter-syndrome.pdf

 

The Klinefelter Syndrome Association: www.ksa-uk.net 

 

The Klinefelter’s Syndrome Association (KSA) offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS) and XXY

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