The Klinefelter Syndrome Multi-Specialty clinic is one of the first in the UK & Europe to address the many needs of patients diagnosed with Klinefelter (XXY) Syndrome. Klinefelter Syndrome affects 1:500 men and is thought to be one of the most common congenital chromosomal disorders. Fertility, hormonal and well-being issues are the main concerns in men affected with Klinefelter Syndrome.
What we do:
A specialist one-stop clinic has been set up at Guy’s Hospital that covers all important aspects of the disease, with experts in genetics, endocrinology, urology, reproductive medicine and radiology all seeing and counselling patients through the various aspects of the condition. A nurse counsellor is present to address any other personal concerns a patient may have. An individualised management plan is then created for each patient based on their priorities and this is given to both patient and GP/referring clinician.
Having a one-stop clinic reduces the number of visits a patient will have to make, from an average of 6-7 visits for investigations and clinic appointments to just the one visit. The one-stop clinic also reduces overall waiting time by up to 12-16 months and importantly also effectively ensures that all the key issues in the disease can be covered by a dedicated team in a specialist setting. A member of the Klinefelter Syndrome Association (www.ksa-uk.net ) is also present to give a personal view on living with Klinefelter Syndrome.
How to refer:
To refer a patient with Klinefelter Syndrome to the clinic please email; firstname.lastname@example.org
A checklist for referrals is available on;
Useful additional sources of information:
The Klinefelter Clinic at Guy’ Hosptial: www.guysandstthomas.nhs.uk/our-services/urology/specialties/klinefelter-syndome/overview.aspx
Klinefelter Syndrome patient information sheet: www.guysandstthomas.nhs.uk/resources/patient-information/urology/andrology/klinefelter-syndrome.pdf
The Klinefelter Syndrome Association: www.ksa-uk.net
The Klinefelter’s Syndrome Association (KSA) offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS) and XXY